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Disease Study Groups - Pediatrics

 

Welcome to the Pediatric Working Group,

 

We have started several research initiatives, spearheaded by members of our group and involving multiple institutions in Europe and North America. We are also working on establishing a uniform CMR imaging approach towards children congenital heart disease. Please see below for details.

 

An Executive Committee was formed by election, currently including the following colleagues:

 

Dr. Mark Fogel

Dr. Andrew Powell

Dr. Margret Samyn

Dr. Tiffanie Johnson

Dr. Beth Printz

Dr. Rajesh Krishnamurthy

Dr. Emanuela Valsangiacomo-Buechel

Dr. Lars Grosse-Wortmann

 

We invite you to come to our meeting during the SCMR Scientific Sessions next month in Orlando. We also encourage you to publish your interesting case reports as a "Case of the Week" on this website!

 

If you would like to get involved, please contact Dr. Mark Fogel at fogel@email.chop.edu‎.

 

If you would like to make an announcement on this website, related to pediatric / congenital CMR, please contact Dr. Lars Grosse-Wortmann at lars.grosse-wortmann@sickkids.ca.

 

 

Pediatric myocarditis research group

Given the paucity of data on CMR findings in children with myocarditis, we are pursuing a multicenter, retrospective review of CMR findings in children diagnosed with myocarditis in order to better inform future prospective trials. In addition to describing the CMR findings in this population, the study will also assess institutional variability in the use of CMR and specific CMR protocols in this cohort, correlate the CMR findings with other clinical data such as echocardiogram and endomyocardial biopsy, and attempt to identify CMR predictors of clinical outcomes such as death and need for transplantation. The project has attained IRB approval at Children's Hospital Boston, which will serve as the primary site and core lab, as well as several additional institutions, and a case report form has been developed and reviewed by the working group and a multicenter RedCAP database for data entry is in development. For more information, please contact Puja Banka, MD (puja.banka@cardio.chboston.org).

 

Aortic Regurgitation Research group

Patients with aortic regurgitation are typically followed by serial echocardiograms. CMR data related to the natural and modified history of this condition are scare. A retrospective study with input from multiple institution is currently being implemented. The goal of this study is to compare echocardiographic and CMR findings in these patients and to record their association with outcomes. Based on the retrospective findings, a prospective clinical trial will be carried out among participating institutions. For more information, please contact Margaret Samyn, MD (msamyn@chw.org).

 

Anthracycline Cardiomyopathy Research group

CMR has the potential for early recognition of myocardial dysfunction related to chemotherapy toxicity and may have prognostic relevance. A pilot study is underway with the goal to refine the CMR protocol for imaging the population at risk. Multiple centers collaborate on this project with one core lab. Once pilot data is collected, prospective multicenter studies focused on outcome will be developed. For more information, please contact Olga Salazar, MD (otoro@ccmckids.org).

 

Pediatric CMR protocols consensus groups

A document entitled "Guidelines and Protocols for Cardiovascular Magnetic Resonance in Children and Adults with Congenital Heart Disease" is near completion and we anticipate submission to the Journal of Cardiovascular Magnetic Resonance in the next month. For more information, please contact Sohrab Fratz, MD (fratz@dhm.mhn.de).  In addition, a separate effort to create consensus CMR protocols for acquired pediatric heart disease is in progress.  For more information, please contact Wyman Lai, MD (wyman.lai@columbia.edu).

See you in Orlando!

 

 

last updated
January 2012